Hot Topic: Sex and Intimacy

• A Guide to Sex with an Ostomy
• Useful Ostomy Supplies for Intimacy

Hot Topic: Traveling with an Ostomy

• TSA Screening Cards for Ostomates and those with Health Conditions
• Full Body Scans in Airports and Ostomy
• Preparing for an Ostomy On the Go

Hot Topic: Ostomate Lifestyles

• Ostomy & A Nutritional Diet – Know Your Guts!
• Managing Ostomy Accidents – Leaks, Sleeping, Odors, and Blowouts
• How Weather Affects An Ostomy
• Protecting Yourself from Stoma Injuries
• Learning about Ostomy Complications

Ostomy Supplies and More

• Best Colostomy and Illeostomy Supplies for Different Lifestyles
• Useful Ostomy Supplies for an Active Lifestyle
• Useful Ostomy Supplies For the Overweight
• Useful Ostomy Supplies For Pediatrics
• Cleanliness is Next to Godliness – Ostomy Supplies for Convenience, Cleanliness, and Odor Control
• Interesting Ostomy Products You May Not Have Seen Before

Tips for Living, Overcoming, Surviving, and Thriving with Ostomy

Some of the stories about living with an ostomy, tips for better living, inspirational stories of overcoming cancer, Crohn’s and Ulcerative Colitis.

For Nurses and Health Care Workers

In 2010, the American Nurses Association now recognized wound, ostomy, and continence as a nursing specialty. Here are some resources for study, reference, and to provide the best care for patients.

This event was held on November 2nd, 2011 at Birmingham Town Hall. Each year, Ostomy Lifestyle organizes the swimwear and underwear fashion show as one of their events to promote positive living with an ostomy. See their site to learn more about the models from the 2011 show as well as the Facebook page.

Ostomy Support Groups Team 8th Annual Colon Cancer Challenge (link)

• March 27, 2011 @ Central Park, New York City, NY

UOAA National Conference (link)

• August 7–11, 2011 @ John Ascuaga’s NUGGET in RENO, Nevada

• June 10-12, 2011 @ Hudson River Valley, New York, NY
• August 5-7, 2011 @ The Pacific Northwest, Seattle, WA
• September 16-18, 2011 @ The Midwest, Wisconsin.

• May 7th @ Forest Park, St. Louis, MO (link)

• June 20-24, 2011 @ Camp Tall Timbers in High View, WV
• June 26 – Jul 2, 2011 @ YMCA Camp Colman in Longbranch WA
• July 7-12, 2011 @ The Painted Turtle in Lake Hughes, CA
• July 10-15, 2011 @ Camp Will-A-Way in Winder, GA
• July 10-16, 2011 @ TMCA Camp Copneconic in Fenton, MI
• July 26-31, 2011 @ The Painted Turtle in Lake Hughes, CA (Session 2)
• July 25-31, 2011 @ Roundup River Ranch in Gypsum, CO
• August 1-6, 2011 @ One Heartland Center in Willow River, MN
• August 7-11, 2011 @ YMCA Camp Lakewood in Petosi, MO
• August 7-12, 2011 @ Camp Young Judaea in Waupaca, WI
• August 16-21, 2011 @ Camp Scatico in Elizaville, NY
• August 15-20, 2011 @ Camp Nock-A-Mixon in Kentersville, PA
• August 14-17, 2011 @ Camp John Marc in Meridian, TX

Enjoy!

Learn about Ostomy, Crohn’s, Ulcerative Colitis, and IBD

• The Ostomy Book – updated 2010 edition (it now comes in both book form and for the Kindle)
• Questions & Answers About Ulcerative Colitis
• Inflammatory Bowel Disease: The Essential Guide to Controlling Crohn’s Disease, Colitis and Other IBDs
• Living with Crohn’s and Colitis – Comprehensive Naturopathic Guide for Complete Digestive Wellness
• The New Eating Right for a Bad Gut : The Complete Nutritional Guide to Ileitis, Colitis, Crohn’s Disease, and Inflammatory Bowel Disease

Overcoming, Surviving, and Thriving

A few stories about overcoming cancer, Crohn’s and Ulcerative Colitis published in 2010:

• My Journey: Conquering Ulcerative Colitis
• Beating the Alternative – A story about a man whose life is turned around when diagnosed with colon cancer.

For Nurses and Health Care Workers

In 2010, the American Nurses Association now recognized wound, ostomy, and continence as a nursing specialty. Of course, there are exams to take. Here are three flashcard study systems for the exams:

• CWON Exam Flashcard Study System: CWON Test Practice Questions & Review for the WOCNCB Certified Wound Ostomy Nurse Exam
• CWOCN Exam Flashcard Study System: CWOCN Test Practice Questions & Review for the WOCNCB Certified Wound, Ostomy, and Continence Nurse Exam
• COCN Exam Flashcard Study System: COCN Test Practice Questions & Review for the WOCNCB Certified Ostomy Care Nurse Exam

But for now, I’d like to sum up the year with the year’s most popular Ostomy Guide content:

Number 1 Topic: Traveling
In 2010, we saw many reactions, concerns, and changes in how airport security handles…well, us. This has been by far the most popular topic of the year, as these security policy changes have changed the way all of us perceive air travel; changes that affect those with medical needs the most, including ostomy. Here is some travel-related content on Ostomy Guide:

• Preparing for an Ostomy on the Go
• Full Body Scans and Ostomy
• Unique and Interesting Ostomy Products

Number 3: Ostomy News of 2010
There was a lot of news about Ostomy this year. Below are some of the most interesting tidbits:

• IDEAS Climbs Everest – the last of 7 peaks
• American Nurses Association now recognized wound, ostomy, and continence as a nursing specialty.
• Elvis Could’ve Lived with Colostomy Surgery
• UOAA presents the 1st annual Ostomy Awareness Day
• Nadine Cole supports Ostomy

Number 4: Product Catalogs
This year, we added online catalogs for Hollister, ConvaTec, and Coloplast to first help individuals locate the right supplies in the wide spectrum of Ostomy products, and secondly to help identify their compatibility, product codes, and HCPCS numbers. Since we don’t list prices or sell items on Ostomy Guide, we’ve linked relevant products to the Ostomy Guide sponsor, STL Medical Supply, so you can get more detailed descriptions, prices, and product reviews from individuals who have used them. Here are links to each of these product guides:

• Hollister Product Catalog
• ConvaTec Product Catalog
• Coloplast Product Catalog

Hope you enjoyed this roundup…and…

Happy New Year!!!

These cards do not discriminate from getting screened or not; they are simply to explain your medical condition before any pat-down or screening takes place so you don’t have to shout it out loud across the room, or, not say anything and risk embarassment like this bladder cancer survivor with Urostomy.

These cards merely state that you have a medical condition that may affect the screening:

“Notification Card: I have the following health condition, disability, or medical device that may affect my screening: (Write-in). I understand that presenting this card does not exempt me from screening.”

The back of the card further reinforces that, if asked, you’re going to have to submit to a screening before you can fly:

“TSA Respects the privacy concerns of all members of the traveling public. This card allows you to describe your health condition, disability, or medical device to the TSA officer in a discreet manner. Alternate procedures which provide an equivilent level of security screening are available and can be done in private. Presenting this card does not exempt you from screening.”

Here is a PDF link where you can download the TSA medical notification cards..

Will these cards do much to help the problem? Some argue that TSA was not listening to travelers in the first place, nor are TSA familiar enough with the potential health conditions and appliances of the travlers they are searching, nor are many of our TSA agents all familiar with the use of these cards. (This is 2010, we’ve got e-mail and blogs, does the U.S. government send the memos out to anyone who works for them?)

Others believe this is a positive step towards a solution that balances both our needs for airline security and our civil liberties.

If you or a loved one has a health condition or a medical device and is asked for either a pat-down or a screening, it is in your best interest to keep one of these cards handy in your pocket when going through the airport to (hopefully) alleviate the potential problems.

Read this post for more information on Ostomy and Airport Security and this one about traveling with an Ostomy.

Here are some tips for managing your ostomy in warm and cold temperatures. (See sources/references at the bottom for more information on managing an ostomy.)

Hot Weather

Here are some considerations for managing a stoma in hot climates:

1) Perspiration caused by heat gets between the skin and the barrier, which can cause adhesives to break down. If this is a problem with your adhesive, talk with your nurse and seek out something stronger and more reliable. You can also try an antiperspirant or powder around the ostomy location to keep from perspiration from building up.

2) If you have trouble with ostomy appliance leaks because of moisture, you can also try stoma paste or Eakin seals to create a stronger, more reliable seal.

4) Avoid using any Karaya rubber-based ostomy wafers in high heat conditions. This rubber material is soft and conformable, but in hot conditions it can break down and even melt. It’s best to use a synthetic wafer which tends to have a higher heat threshold.

5) The skin is more susceptible to breakdown when it is hot and moist. his includes the area where the ostomy appliance sits, which can form rashes because of the friction of the pouch against the skin combined with heat. An ostomy pouch cover can be work to soften this, and is also recommended for a more comfortable wear. You can typically find ostomy pouch covers in medical supply stores.

6) Due to sweating, it is especially important for Ostomates to drink more fluids to avoid dehydration.

7) Ostomates who exercise and are more active in the summer months will likely want to keep a variety of pouches, including ostomy mini-pouches and stronger, waterproof adhesives that won’t breakdown if you’re running or swimming. You may also prefer to use a Waterproof tape or elastic ostomy belt with a two-piece system to increase wear time and confidence.

Winter and Cold Weather

Do you have more Ostomy tips for ostomy pouches and different climate conditions? Have you dealt with climate conditions that changed the way you think and wear your ostomy appliances? Leave your comments below!

Enter the Ostomy Algorithm, a set of 11 assessments for non-specialist clinicians to identify the type of ostomy and to optimize care for their patients.

Recently published in the journal Ostomy Wound Management, new quantitative and qualitative results validate the new standardized algorithm for Ostomy care, making it the first guideline for ostomy care management to go through content validation.

The algorithm was developed by an expert panel of WOCN clinicians along with ConvaTec, a manufacturer and provider of Ostomy supplies and innovative technologies in the field. Part of this algorithm includes one of ConvaTec’s new medical tools for health care professionals, known as the SACS Instrument, allowing clinicians to assess and classify peristomal skin lesions as well as track their progress. (Peristomal lesions are a complication facing many ostomates.)

The study validation consisted of 166 ostomy care experts who were asked to quantify the validity of the Ostomy Algorithm’s components on a 4 point grading scale.

Overall, individual scores ranged from 3.59 – 3.91 and an overall validity index of .95 out of 1.0.

These results are well-received; while further refinements are made, it demonstrates the potential for a standardized, evidence-based method for improved Ostomy care that benefits both health care professionals and patients alike.

http://www.news-medical.net/news/20101029/New-Ostomy-Algorithm-receives-support-of-nurses.aspx

Misty was highlighted on Great Comebacks in 2009 as an award recipient.

The videos below were originally recorded for an international conference in 2009 and has since has been viewed in over 8 countries. And now, I’ll let Misty speak for herself!

Note: A big THANK YOU to Thomas Exler for contacting Ostomy Guide with this amazing story! If you have a group or know a group that would like to see the “My Name is Misty Blue” video presentation, please fill out our contact form so I can get you in touch with Thomas. He can prepare a DVD copy for you or make arrangements for Misty to possibly come speak.

My Name is Misty Blue